My Life With Dystonia
These First few writings, or musings, I guess some would call them are going to be about My Daily life Some of the Struggles that People around do not Even realize we have. Close Friends do not Understand the Daily Struggle.
I was Working at Pioneer telephone and was a Network Technician. The Job was not always fun, But it was better than not having one at all. I was close to getting My CCENT for the techies out there they know what that it but just to say it would have meant very Much to me to get it. I was much like everyone else, but after work I noticed I was exhausted. It was normal at first, I thought, everyone was tired after work Right? Then I began to notice what my fellow employees could do after work. It was amazing to me and I began to wonder. at sixteen years old my sister Got the Disease, but she could handle it better, she was more equipped. I was a man who had to support my family. So I continued. Ignoring the signs of the Disease. Thinking if I ignore them it will go away it can't be what i know it might be. Humans tend to think we are invincible. Believe me as I take you Down this Journey Consider What could happen to you and what would your family do, more importantly what will Your family have to go through, and for me that is the hard part. Caretakers mostly family members get forgotten but they share in the disease. Unfortunately even Friends and People you thought were close no longer want to "Hang Out", I guess is the term nowadays, so you begin to feel like the those with leprosy who had to cry out "Unclean" every time they went down a street. Like I said the first few will be things I have noticed about the people around me then I can get into the Daily life of one who has this thing called "Generalized Dystonia" I will Put up videos on my youtube Channel Just so everyone can see it is not fake, or made up, or something that I can Just stop when I want. and Hopefully My Wife, Who is Caretaker, Will Post here, and I would like my sister to share some things as well, and My Father and Mother I would like them to share. I know it Probably has been hardest on them. This Disease has affected the whole family structure, and I will show it. as we share this Journey together. Please feel free to ask questions or post comments.