Skip to main content

Quarantined


    I know this may come as a shock to you, but all of the stay at home orders and the social distancing haven't changed my life my much. I Couldn't go much of anywhere or do anything before this started. So I have not really noticed a difference in my day to day non-activities, and many people are probably like me, and their Lives haven't changed much either.
   To those of you you who are always on the go and suddenly had to stop you might just contemplate and remind yourself that there are people who must live like this all the time, and then you can appreciate what you can do once this has passed.
    I did not write a single word in March, because I had something else on my mind. I was thinking about my beautiful granddaughter whose birthday was in March she was on my mind this March more than most, and I am not sure why, but it was so. I wonder what she would look like, what she would be doing, and I know she would be a papa's girl. I did not know that you could love a human being that lived only nine days like I Loved Halli. I can remember rubbing her feet as my wife held her knowing that Trisomy18 had the upper hand and it would not be long and she would wrapped up safely in the arms of my saviour. I feel blessed to have had those nine days with her, and I would not trade those for anything "Precious Memories" is the truth! I am thankful that God chose to give me a good memory I can remember things from my childhood that my parents or other siblings do.
     I go out to her grave site often to visit, yes I know she is not there, but it is for me. I talk to her as if she where there. I guess people deal with death differently. one is not wrong or right it is just the difference in how we deal with it. I can't quite put into words what I have felt or am feeling this month, but those of you who have lost a child or Grandchild probably do not know exactly what you are thinking either. Sometimes things Just roll around in my head and I cannot put them into words.
   There are times I feel alone in this struggle, and times I am not sure I can make it, but then again there are people who have it worse than I do. Life is sometimes just hard, and we know it will be, but when it happens we are not ready. We think somewhere in the back of our heads that we will exempt from the trials and struggles of this life, and to be honest there are many time I grow weary of this life, but don't we all at one point or another? we are all human we all have emotions no matter what colour or what background from which you come.
    I know that I am not alone, and that there are people who care I just have days and months like this one that I need to reflect. Not say much just reflect.
   As for my health I go to the Doctor on the 21st of April to discuss the new DBS system that they have developed for Dystonia patients, if they are still seeing patients that is, since I am a high risk person they do not want me going much of anywhere.
   I do no think I have washed my hands so much my entire life than I have the past couple of weeks. It seems every five minutes my wife is telling me to go wash my hands, and all I have been doing is not much of anything, but like a good husband I obey:-)
    This quarantine will pass and everyone will go back to there normal lives, or what they consider normal, but just remember that there are those whose lives will still be quarantined. Do not forget about those. I know I would have had I not had this disease. If you have your health that the Lord for it and stay safe. You are never promised tomorrow just enjoy today even if it is quarantined.
 

Comments

  1. Our life hasn’t changed that much either. I never went much of anywhere because of homeschooling and only having one car. However, i miss just knowing I could go somewhere! We are praying that you stay healthy! Love you!

    ReplyDelete
  2. I know this staying at home has been hard on many, but I had been bedridden since February.Nothing in my life has changed. I have gone to the doc more than usual...other than that homeschooling does continue as I put my energy into that. I’m just hoping that better health comes with warmer weather, and that I can get out in the sun soon. I haven’t been anywhere else for months...and I hope to avoid docs for a good while. 😊 Love you! 💙

    ReplyDelete

Post a Comment

Popular posts from this blog

anonymous

I’m not very good at sharing all the health challenges that I face...and that as a result are faced by my family. Joshua does a much better job at putting into words what that is like.

I wanted to make a post about the relationship Joshua and I have together...and how it has changed over the years. 
Joshua and I have been close for as long as I can remember. We are only 19 months apart so I don’t remember life without him. Each of my siblings played a special role in my life. I loved being outdoors, but if I wanted to go get muddy...well, Joshua wasn’t the one I asked. However, Joshua was a good listener, and we could have some great conversations about so many subjects. He also loves Southern Gospel music so we would listen and sing together. He has musical talent. I don’t. He still put up with me though. Since we went to Christian schools or homeschool, we frequently had classes together. Sometimes three years were put in the same classroom. Once in the seventh grade, 7-12th had a c…

Living with Dystonia My Story. Follow me on my Journey for a cure

My Life With Dystonia It was about Ten years ago, My sister was going through a Hard time with this disease. I did not understand it. For some reason we don't take up a cause until we are affected by it. She had undergone DBS surgery you can read more about that from the Link. 
  She began to have Dystonic Storms, Link to what one Looks like to come later, I would take care of her it was a tough Job, but even tougher for her. I never dreamed I would later have the same disease. There will be more to come financial struggles, and yes there will be some triumph. I Just want to take you on this journey with me. this is a Terrible Disease it affects the whole family. Please this may be boring at first, but will you follow the Journey  

Forgetting the caregiver

People are always asking questions about my husband. How is he doing? Is the weather bothering him? Did the storms bother him? Most of the questions are not well, yes and YES.  Often times people forget about the caregivers for the ill. They don't understand the strain it puts on the ones who care for the sick. Now,  I'm not complaining, just enlightening. We as caregivers do a lot more then just give meds or food. It's a minute by minute job. One minute I might be in the kitchen preparing a meal and then have to run and sit on the floor holding his head til the seizure is over. Then I have to help him to his chair, with the help of Scoobie of course.                                                                                                                                                                                                                                               When we go shopping I can't fully engage because I'm watching his every move …